The Countdown to MAID
By Debbie Kerr
Until recently, I never really thought about how often we, as current and former cancer patients, count down. We count the days until we have tests done and then we count the days until the appointment where we will get the test results. It’s five days, four, three, two and one until the day of surgery. One day before the first chemotherapy treatment. And the counting continues for each major milestone in treatment, for example, two days until you celebrate your cancer anniversary.
Because of this counting, each one of us has said, “I hate waiting.”
Now, imagine, instead of counting the days until your next milestone, you are counting the days until you’ll die, because you know exactly what date that will be. While once unheard of, with the legalization of Medical Assistance in Dying (MAID) in Canada, in 2016, this option is now available. Until this month, I didn’t know anyone who met the criteria and had elected to choose this option.
Over the years, I have had several friends die from cancer. One person, Lise, who lived in another province, went into palliative care and was no longer eating or drinking. Each day I received an email from someone telling me whether or not she was alive. Many weeks later, I received the email I was expecting. She had died. Everyone was surprised at how long she lived…possibly because she would not accept that she was dying. Lise believed she was going home and would live at least another two years.
Another friend, Rosanne, had terminal cancer and accepted that her death was near. I talked to her about the timing of my visit. I decided to let family and other friends visit her first before I went to see her. That was a mistake. I called her daughter on the morning of my planned visit only to be told that Rosanne had passed away. For me, there wouldn’t be a last visit other than my last conversation with her on the phone.
Now, another friend, John, has run out of options for cancer treatments. There is no hope that a cure will be found to save his life. He knows that the time he has left with his family will be far shorter than he’d hoped. He knows his health will deteriorate, but he doesn’t know how quickly. With MAID as an option, John had to decide whether he wanted to let cancer run its course or whether he wanted to control when his life would end.
Having never been in this situation, I can only imagine the conversations that John and his wife had before they made the decision that MAID was the best option for them. Knowing how much John loves his wife and children, I would assume that the biggest heart-wrenching hurdle to overcome would be saying good-bye sooner rather than later.
This feeling would have to be weighed against the quality of life for John and his family. Over time, he would become a shadow of his former self. The cancer would take a physical toll and the whole experience would be an emotional one for everyone. As his health deteriorated, he would require more and more assistance from the people around him to the point where he might worry that he had become a burden to them. John may have wanted to ensure that the last memory his children had of him was a good one…when dad still looked like dad.
Having made the decisions and the arrangements, the countdown starts. I’m just a third party, and each day I wake up and think about John and his family. I selfishly wish that I didn’t have to feel this pain every morning. Eventually, when I can thrust these thoughts aside, I think of John and what I can only imagine he is going through. What is it like for him to know this is his last Monday, Tuesday and Wednesday and that the time left with his family and friends is all too quickly running out?
Personally, I don’t know if I could have made the decision to use MAID, because I don’t know if I could get over the very big hurdle of saying good-bye to my family and friends sooner rather than later. Until now, I have never thought about what I would do in the same situation. And even then, it’s one thing to decide whether or not you would want MAID and it’s another to be actually in that position where I have to weigh the importance of quality of life over the length of my life.
As for John, I’m glad that I have had the opportunity to tell him that he is loved and it has been an honour to know him. It will not be like someone dying suddenly and knowing that your last words were said in anger or regretting that you never told the person just how much you loved them.
While John has not reached the day when he will leave this world, I hope, surrounded by the people he loves, he will find the peace that he deserves. I hope that his wife and children will, with time, find some form of peace as well, knowing there is one less great guy in the world.
5/27/2020 11:48:14 am
Wow, that is a powerful blog, Debbie. I am not sure what I would do in that situation. It is a tough decision but it is great that the option is available. Take care, love Angela
5/27/2020 01:47:58 pm
Difficult, but important subject matter. Thank You for writing it!
5/27/2020 11:14:52 pm
It's so very tragic - a person counting the days until they die. I'm glad that MAID is available. Some people are in terrible pain and struggling to breathe and feeling terrified. It's still very hard to imagine being in that situation.
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Over 30-years of writing experience, about 10 years as a cancer survivor, and a lifetime purveyor of wit and laughter.
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